I just came across your post and am curious if you ever got any answers? I know it’s been over five years since you’ve posted but I thought it was worth a shot.
I have recently discovered that I have a bilateral “cookie bite” hearing loss and like you, there’s no eveidence of a genetic basis. My only theory for the cause is a possible head injury I sustained as an infant (I fell down the stairs & was kicked in the head by a horse). I was never taken to the hospital or received any formal diagnosis but these are the only events that I can think of that may be contributing factors to my loss.
I hope to hear back from you! If anyone else has a similar loss, I would also love to hear from you. I would really like to know what caused my hearing loss. Thank you!
hello, i also have cookie bite hearing loss and no hearing loss runing in family. Only event was when a car hit me when i was 22 years, an lost my consciousness for half an hour because of the head injury. I was discharged without investigations because i had no symptoms like diziness and so. So, my story is similar to yours.