I am new to the forum but have subscribed to AOHL for many years. My deafness is otosclerosis and is profound in my right and a little better in my left as I had a stapedectomy in that ear in 1971 and it is still giving me some benefit. I have been ruled out as a recipient of a cochlear implant.
I have used a private audiologist for 20 years or so as NHS aids were somewhat inadequate and I now use Resound En998 which I understand are some of the most powerful available. They work well on a one to one basis in quiet surroundings but I hear very little when there is background noise. I cannot participate in any group activity or hear briefings, announcements, lectures or listen to music. These are normal problems and I accept them. I use lots of equipment for the deaf, phone, alarms, clocks, Comfort Contego (wonderful personal loop system) and powerful head phones.
The notification of the forthcoming AGM with personal details of the candidates has led me to question whether I have the best aids available and whether I could do more within the community than I am doing now. I ask these questions because at least 6 of the prospective candidates have profound hearing loss and yet they appear to be actively participating in group discussions and leading very busy lives. How are they achieving this with profound hearing loss?
If any members out there have any ideas of what more I could do to reach the level of communication abilities that the candidates have I should be pleased to hear from them.
A lot has changed since you tried those Phonak. The V90, have Auto sense OS, which seems to have replaced Soundflow.
I had a taste of what that can do, but unfortunately they were not properly set up at the time. But I could hear my family talking across the table, which I have been unable to do for years. It was not very clear, but an improvement.
Thank you John, I wish you well with your Phonak aids; I tried those 9 years ago without much success and I have also had Starkey, Unitron and Oticon but Resound have been the best but within a year one has failed twice and had to go back for repair. I keep trying.and I expect you will too.
all the best
I would also like to know how some people manage to live a busy life with a profound loss. You may already have the best aids, but there s no harm in trying others.
I have a profound loss in the left, and a reverse slope in the right. At present I am using NHS Nathos S+ SP aids, and they are just ok. I am also in the midst of trying to set up some Phonak Naida V90`s which I know are better, but have been delayed by two weeks in hospital, in which my hearing has taken a dive due to antibiotics. There is a little improvement, but not back to normal yet. I wish you luck...