Hi everyone, this is my first post and was after some advice.
I've been suffering with hearing loss for a couple of years now, mainly trying to follow conversations either in the office where I work, I've noticed my hearing is bad if I'm out with friends, even walking through the city centre, I can't hear them speak, or say if it's windy and I'm out of town, I'm still struggling.
I can't hear my phone ring if it's in my pocket, and I can't use my phone in crowded places.
It's really started to affect my confidence and it's more noticeable now I've gone back into working in an office.
I went and had a hearing test done privately and was told I had a blockage in my ear and conductive hearing loss and given a letter to go to ENT
The letter has someone's else's name on it and I was a bit dubious, so I went for another test elsewhere, and the audiologist confirmed that I had sensoneurial hearing loss and no blocked ears and gave me a letter for my GP as I'm only 40
I went to see my GP who confirmed again no blockages in my ears and I've finally got my appointment after a 3 month wait, which is on 20th Feb, just before my 41st birthday.
I'm just a bit confused with everything and wanted to know what I should expect. I've been referred to ENT specialist registrar, not sure what this means.
Can anyone give me an idea of what to expect, and do they just test my hearing, or do they do other tests to tell what type of hearing loss I've got
Thanks in advanxe
hi Dave, I'm a brand newbie too, just registered today but could only register/log on on my phone, as the site log in doesn't work on iPad. (I mention that as this typing may be rubbish! And short)
Just wanted to say hello, when I can get the iPad working I'll fill in my history, but in short, and nothing like your situation, I suddenly went deaf in one ear on Friday night. Just total switch off. Saw out of hours GP, who started me on massive dose of steroids, and should get an urgent ent appointment this week.
No infection, or anything obvious like that, it also looks like sensory hearing loss, as Ive no sound through the bone either (fork test). Just a totally dead ear. Its all very strange at the moment, and not what I thought losing an ear would feel like. (My good ear has gone bananas, super sensitive, flattens all sounds into a jumble with no direction or distance.)
i assume though, that my initial visit may be similar to yours, so happy to share, so whilst Ive had a jump start here in the process, I'm expecting this journey to be a tad slower as we move on.
Reading these forums has already been really helpful,
but hope you're doing ok, for me, already understanding a bit about this has already helped (though I think I'm a tad inappropriately high due to the steroids!) and as each day moves on, I'm getting slightly less anxious about my good ear just switching off too. It was really disconcerting when it happened.
Catch up soon, Caroline (apols if format is bad, hate typing on phones!)
Hi Caroline, thanks for replying and I hope your hearing gets sorted out soon, please keep me posted and I'll do the same once i've had my appointment next tuesday
Hope your days been OK. No news here apart from Id been told by out of hours, that if Id not heard anything, to chase down the appointment. Im on a massive dose of daily steroids but they run out on thursday, and OOH GP didnt give longer in case we’re barking up the wrong tree. So did some chasing today, and ended up being lectured by an ENT secretary on the politics of the NHS. Great. She says itll be at least next week, and then a maybe, urgent or not. The steroid/reason for urgent referal, fell ironically on deaf ears. You will probably beat me to your appointment.
Im trying not to focus on it at the moment, (apart from appointment chasing) but its hard, as the first 48hours I was all over the internet, trying to self diagnose etc and testing myself at home with various hearing online tests etc, but there has been a slight change today in my good ear, and as thats the ear Im most panicked about (tbf Im terrified of an instant, no warning switch off there too) I have noticed the hypersensitivity has stopped and sounds are now duller on my good ear. Has it just adjusted back to normal (still weird how sound is non-directional/distance linked) or is the hearing dropping off more gradually? I dont know. But as theres pretty much bugger all I can do (and quite possibly bugger all the NHS can do, hence secretarys shoulder shrugging,) it could just be a wait and see situation anyway. From what Ive found on here and elsewhere (Dr Google, but what other choices do we have?) steroids were absolutely the right immediate response and after that it is all a bit hit and miss.
Hows your day been? How are you managing in busy rooms/environments? I cant seem to tolerate busy places/noise, as it all jumbles up together, and had one occasion where I lost my phone. Could hear it ringing vaguely, (wasnt the awaited call back ) but didnt have a clue where it was. Left the room and lost the sound, so narrowed it down to the living room, but then had to strip out the whole room to find it. Cushions, handbag, etc then found it on the mantlepiece. I never put it on the mantlepiece! So lesson learnt there, always put it where it lives!
Meant to ask yesterday, is there anything relevant in your history? Are you ex forces or anything? 40 does seem young to start with a generalised hearing loss, so Ill keep my fingers crossed for you that it may be linked to other health issues, eustacian dysfunction etc that could respond to diets/treatment. Im not in that category as theres no sound travelling through the bone, infection or anything, I can only hope it switches back on, as suddenly as it switched off.
On a positive, Ive worked around the phone typing issue. Typed this on my ipad, then sent it to myself. Whoo! Theres a win :)
But hope youre managing ok. It is a huge adjustment so despite mine being a tad more sudden than yours, the adjustment issues Im sure are just as difficult. (Not quite so hyper on the steroids tonight, though sleep is impossible)
Catch up soon, Caroline
PS Hi Anthony, are you in NZ by chance? (your link) and Hi Vicky. I will get round to starting my own thread on on my SSHL but think I came here for a touch of hand holding, so poor Daves got lumbered with me on his!
Sent from my iPad
Hi Caroline I hope you get an appointment soon, I know how frustrating it can be, I waited 2 months and heard nothing (excuse the pun) and my urgent appointment took almost 6 weeks from referral to appointment next week. Like yourself i'm struggling with noisy environments.
Even in the office I was sat next to someone who was explaining something, and there were 2 other people talking at the other side of the office, only 8 feet away, but I couldn't hear the person next to me.
I had cancer 7 years ago, and that's my only major health blip, I've also gone to a lot of concerts/raves the past 20 years but I've always worn earplugs, i just think it's one of those things as I'm getting older. It does get embarrassing when you're trying to follow a conversation with what you think someone has said and then chipping in based on the misheard conversation, only to look stupid, I started noticing that a couple of years ago.
Hope you're tolerating the steroids ok and managing to sleep, there's nothing worse than not being able to sleep, and hope you're another day closer to getting your hearing sorted :)