My Grommets and Me

This new post is (like my last, and I guess, like many on the forum) to help me. Airing how we are feeling helps.....and those who have experienced the same may have tips which aid coping.

So essentially my story....for those who I haven't bored (or cried to!) before. Developed mild bilateral tinnitus after trivial cold. Tinnitus worsened ,plus pressure feelings, pain and squeaks, crackles etc occasionally from Eustachian tubes, plus resistant sinusitis. Tinnitus worsened, post-nasal drip, developing ear pressure and popping. Referred to NHS ENT.....'tinnitus related to mild age-related hearing loss, Eustachian tube function normal' spite of better than average audiogram for age (61)....and a tympanogram that the technician could get no trace form the right ear. "You will wakeup one morning and think....'This isn't so bad, and you'll learn to ignore's a few leaflets on tinnitus...have a good life'.....sorry if this sounds bitter...but I am.Then panic attacks ,depression, frankly suicidal, weight loss, constipation,piles, urine retention etc. in addition to massive ear pressure and tinnitus.

Elected to see a consultant privately and urgently......he treated my resistant sinusitis...listened and gave me his mobile number to contact him if matters didn't improve. They worsened. I e-mailed his secretary a week ago today...he saw me that morning (NHS)....he repeated all tests....."severe Eustachian tube dysfunction...right worse than left....urgent grommets under general anaesthesia as ?anterior wall very prominent' So he found the nearest slot available on a list of one of his colleagues...that was yesterday.

In the meantime I develop two septic toes.....but I said nothing.....

Yesterday, after the usual panic that no bed would be available due to winter pressures, the call came to go.Lovely admission nurse, lovely surgical team....all came and introduced themselves, discussed all benefits and risks and 3:00 p.m to theatre. Woke up with a 'major hangover' , ear pain and massive tinnitus in my left ear (my 'best ear'), plus my ears/head feeling huge. Still able to eat ( referred to dietician as dramatic weight loss and BMI putting me in the 'alert section'), drink and allowed home.

In the meantime,toes looking/feeling very angry and lines coming up foot. Intense heat and pain......found some old antibiotics and started them.

After a poor night's sleep (with 'whooshing' in my left ear in time with my heartbeat in addition to tinnitus) I am up and about. Tinnitus pretty deafening,rather deaf both ears, left ear feeling pretty pressurised....but not of the usual type...I think. BUT...less than 24 hours ...and my foot is improving. I am hoping that a lot of my symptoms are swelling-related and my ears getting used to their 'plugs'

Forgot to add my throat is now sore due to intubation and I have bitten my tongue (prior to the op) badly.....must have mistaken it for food!

I'm not sure if this post is going to help or hinder anyone who is on a similar path to me....I hope it's not the latter. At the moment I am marking time and will tell it how it is (for me at least). If nothing else....if you are unhappy with what you have been told, then to get a second opinion is the right thing to do.

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  • Dear Sandie
    So sorry to see you going through the worst stage of T, this is the tough stage with all the dark thoughts that are normal with this condition.
    I like yourself at this stage discussed the final solution with my loved one, a very painful experience, I do know where you are at the moment.
    I re-looked at the problem and thought how I could use these thoughts to my advantage. What was my biggest worry, that there was no end point to the condition and that I had no control of events.
    I have addressed this by giving myself an end point of two years, at the end of that time I will re evaluate the position and then choose if I wish to continue for another period of time. This has put me back in control of events and choice of how I cope.
    This way of facing the dark thoughts have helped me get through this awful stage.
    Sandie, we can only relate of how we are coping with this condition and offer our thoughts that may be of help.
    It will ease and you will be able to cope, but it does take time and it is not easy especially in the early stages that you are going through at the moment.
    Look forward to June, best month of the year in my opinion, all life has sprouted, every thing looks new, nice long evenings to enjoy nature at its best.
    Wishing you well
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